Hemophilia
Hemophilia is a rare disorder that often results in multiple health challenges requiring expert evaluation and treatment. Comprehensive care for a person with hemophilia may be defined as ongoing supervision of medical, psychological and social factors for the patient and his or her family.
The concept of the comprehensive care model stemmed from the great advances in hemophilia treatment in the 1960s and 70s. With the advent of effective methods of treatment for bleeding episodes, people with hemophilia began to enjoy a relatively normal life expectancy. The focus and urgency of medical care shifted from crisis management and emergency treatment to associated long-term lifestyle-related issues and challenges, both physical and emotional.
Other bleeding disorders
Over the years, other inherited bleeding disorders have been included in this comprehensive care model. At the Center for Bleeding and Clotting Disorders at the University of Minnesota Medical Center, Fairview, we care for people with such inherited bleeding disorders as, von Willebrand disease (VWD), various rare factor deficiencies and platelet defects. VWD is a more common bleeding disorder than hemophilia. However, for most individuals with VWD, bleeding and associated complications are less severe than those in persons with hemophilia. Additionally, unlike hemophilia, VWD affects females as well as males.
Thrombosis
Our experienced staff provide thrombosis patients with evaluation, treatment, education and follow-up as needed. We also teach patients how to prevent future recurrences. Anticoagulation drug management and advice are provided if needed.
The Center for Bleeding and Clotting Disorders strives to continue collaborative efforts that provide exceptional care to persons with bleeding and clotting disorders. We work with local, regional, national and international providers to address the challenges encountered by people with bleeding and clotting disorders. We also provide education for patients, family members, schools and employment staff, as well as other health care providers.
Consultation services
Staff at the Center for Bleeding and Clotting Disorders serve as consultants for assistance in treatment recommendations and guidelines for our patients in the areas of acute bleeding, prevention, invasive procedures or surgeries.